SIR Foundation Registries

About SIR's Uterine Fibroid Symptom Health-related Quality of Life Questionnaire (UFS-QOL)

The Uterine Fibroid Symptom Health-Related Quality of Life Questionnaire (UFS-QOL) is a tool specifically designed to assess the symptoms associated with uterine fibroid tumors. It was developed by SIR Past President James B. Spies, M.D., MPH, FSIR, in conjunction with the RAND Corporation, and is currently in use by several research groups.

The UFS-QOL is a self-reported questionnaire used to measure both a patient's objective pre-treatment and post-treatment symptoms (i.e. bleeding, cramping) and subjective experience (i.e. a patient feeling "blue" or "less productive"). Answers to the questionnaire may indicate the severity of the patient's condition without more invasive measures, and could subsequently aid in determining treatment.

The UFS-QOL is available for use in research studies. To request use of this questionnaire, complete the UFS-QOL Request Form.

Please note that if the research study is industry-related, the Society of Interventional Radiology Foundation requires payment for the use of the UFS-QOL.

FAQs

Q: What is the UFS-QOL?
A: The Uterine Fibroid Symptom Health-Related Quality of Life Questionnaire (UFS-QOL) is a highly effective research tool. It is a survey given to be women over the age of 21 who have been diagnosed with uterine fibroid tumors.

Q: What kinds of questions does the UFS-QOL ask?
A: It asks questions about physical health, emotional effect and concerns regarding the impact of uterine fibroid tumors on the patients, using a 1-5 scale of severity. The questions the UFS-QOL uses are designed to give an overall picture of a patient's quality of life as it pertains to her condition. The questionnaire asks about symptoms experienced by women who have uterine fibroid tumors as well as how those symptoms have impacted their lives.

Q: How is the UFS-QOL currently used?
A: The UFS-QOL is being used in several research projects, both industry-funded and independently funded.

Q: What can the UFS-QOL offer me?
A: The UFS-QOL can be instrumental in discriminating between normal women and women with uterine fibroids, as well as helpful in detecting varying signs of symptom severity and impact on quality of life, without the use of more invasive procedures.

Q: How can I obtain a copy of the UFS-QOL?
A: The questionnaire is available for use in SIR Foundation-approved studies and requires execution of a legal agreement. The questionnaire is free of charge to SIR members and for institutional use. Please note however, that for research conducted by industry, a fee is required.

Q: Is the UFS-QOL available in electronic version?
A: There is a PDF version only.

Q: Is the UFS-QOL offered in any other languages?
A: Yes. The SIR Foundation will provide the validated English version of the UFS-QOL per the current legal agreement. Copies of any of the additional languages can be provided free of charge after the agreement is executed. See the UFS-QOL Request Form for further details on the types of language we currently offer.

Q: Once I submit the UFS- QOL Request Form how soon can I expect to receive a response?
A: We will respond to your request within 2-3 business days.

Q: Do I need to provide proof of payment before receiving a copy of the Questionnaire?
A: Yes. We must receive a proof of payment before we can process your request.

Q: How much would it cost to use the UFS-QOL questionnaire if this is an industry request?
A: $2,500 for the English version.

Q: If I request the same language for two studies would there be an additional charge?
A: No, charges for use of translated questionnaires are one-time.